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Bedford Ramblings
Steve Mills

An exciting personal note:

Posted Tuesday, November 14, 2017, at 11:03 PM
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  • Prayers go out to you Steve. Keep us updated

    -- Posted by espoontoon on Wed, Nov 15, 2017, at 9:45 AM
  • Steve, I'm glad you're feeling better and hope you are on to something. Good luck.

    -- Posted by fair share on Wed, Nov 15, 2017, at 2:00 PM
  • Thanks espoontoon and fairshare. I slipped a little today but at the doctor as I write to discuss what happened and see if we can explore a little.

    -- Posted by stevemills on Wed, Nov 15, 2017, at 2:18 PM
  • Amen Amen Steve! Will keep you in prayer! Let us know what you find out. Lots of us care about you and your family. HP

    -- Posted by horsepoopperson on Wed, Nov 15, 2017, at 5:12 PM
  • Thanks HP.

    My doctor listens. They prescribed a regimen for Lyme eealted arthritis.

    -- Posted by stevemills on Wed, Nov 15, 2017, at 6:11 PM
  • Glad to hear you may have a handle on your physical problems. I hope all works out for you.

    -- Posted by cmcclanahan on Thu, Nov 16, 2017, at 12:46 PM
  • Sound to me like your on the right track Steve! I personally think the doctors put us on too many drugs and with all the side effects they produce, well, let's just say I have cut my own prescription drugs down some and feel much better.

    I tried cold turkey one time before and had to go to the hospital and go back on them. Now I just cut back on them.

    I read about a drug that lowers blood pressure and would eliminate other blood pressure meds. The VA was involved in the research of this Successful drug, yet the VA doesn't give it to patients! Go figure!

    Keep us informed of your progress and keep the blogs going if you can. I hope this works for your benefit and health.

    -- Posted by sui on Thu, Nov 16, 2017, at 2:08 PM
  • Thanks Carl and sui. One of the biggest things I am excited about is my physician listening and against what they think, doing what I ask.

    It had to be legal of course but I said "Hey, if we try it and it does not work, you have at least helped me stop obsessing about trying it."

    If it DOES work, maybe others can try it when all else go against medical convention. I won't even care what was causing it anymore, if it starts getting better.

    I may get a bit ticked at ALL the doctors who let me go through this for years without trying, but I am getting ahead of things. No, I am still miffed at not at least trying it. :-/

    -- Posted by stevemills on Thu, Nov 16, 2017, at 3:30 PM
  • Steve, I can understand you being Ticked at your doctors. I was ticked at mine too. No I was more than Ticked! I actually called my doctor an SOB while I was on the operating table.

    I agreed to have a heart by-pass surgery. I went to the hospital and they came in and told me I was having a heart attack and put a nitro pill under my tongue so they could call in all the doctors before I died. I was not having any pain what so ever and had no idea what they were talking about.

    They gave me a twilight shot and rolled me down to the basement to perform their miracle operation on me. On the way down they were banging into the walls and columns. If I was having a heart attack I think that would have made me feel the pain, but nothing.

    I did pass out a couple times and the doctor did his CPR on my chest. I told him to get off me, I only passed out. He informed me that I had died.

    I passed out a couple more times because I heard the doctors say we are losing him again.

    When they finally reached the operating room, they started putting those patches on me to connect their wires to. I couldn't see anything so I may have been drugged enough not to open my eyes.

    They began by pulling the patches off and putting another one in it's place. I heard them say is the red one okay for you or do you want a green or blues one, then off the patch would come again. It felt like they were ripping my chest open. I cussed my doctor and called him a SOB and told him if I knew he was going to torture me like that I would have never agreed to have the by-pass surgery.

    I told him to give me something for the pain, but he insisted that he would before he operated on me.

    When I woke up, the doc was taking the tube out of my mouth and asked me if I remembered what I said to him. I told him I said to get off me I only passed out. I didn't tell him that I remembered calling him an SOB. To this day I think he thinks I was drugged and don't remember what I said.

    I asked several doctors and nurses what were they doing that made me feel all that pain.

    About two years after my surgery, my VA Doctor asked me, "You do know you have COPD, asthma, emphysema, diabetes and arthritis?" Of course I told her no. I mean I just had a new by-pass artery put in my body to make the blood flow better. I should feel like a new born colt. But I didn't. I felt worst than ever.

    By then I realized what the pain was that I was having on the operating tale. They were waxing my chest hair. It took me 60 some years to grow all that hair and they pulled it out in about 15 minutes.

    Now I know what happened to me that day I was having a heart attack.

    I was not having a heart attack. I was having a Diabetes low blood sugar crash from not getting anything to eat before surgery, and passed out. They didn't know I had diabetes because I didn't even know it at that time. That explains the flatline. When I pass out I flatline for a few seconds.

    I have cursed all doctors every since.

    -- Posted by sui on Fri, Nov 17, 2017, at 11:38 PM
  • Sui, low blood sugar doesn't make the heart flatline. If they were doing CPR, your heart was probably going into ventricular tachycardia which can sometimes keep pumping a little blood but is a very unstable rhythm. It was probably doing that because of irritation of the conducting system due to muscle injury (heart attack). Interestingly, around 10% of all heart attacks are asymptomatic as far as chest pain. That goes up to about 25% for diabetics.

    -- Posted by fair share on Sat, Nov 18, 2017, at 6:26 AM
  • Steve, I wish I had known a long time ago that you were on gabapentin; I would have told you about the problem. And antibiotics won't do a thing about the flu. I don't have to worry about Lyme disease; I'm on doxycycline.

    -- Posted by Tyger on Sat, Nov 18, 2017, at 8:43 AM
  • Sui, i did not cuss the guy that pulled the tube out of my chest after bypass, but when came in to check on me he asked if i remebered him. Ha, i sure as he** did!

    The other time was when my ent was cleaning blood away from a deviated septum op and did not deaden far enough. I hit him but don't remember what I said.

    My brother is diabetic and was not feeling the angina for years before his operation. He felt it afterwards though.

    Tyger, I will be completely off gabapentin in a few days. It never helped but it sure hurt. Doxycycline is what I am taking now.

    Ive had a few very physical days so i am hurting extra right now but I am optimistic. That alone is a big plus.

    -- Posted by stevemills on Sat, Nov 18, 2017, at 6:47 PM
  • Steve, may be you should look into low-dose Naltrexone (naloxone HCL). If your doctor was prescribing "gaba" he might not know about it, you might need to look for one experience in prescribing it. It appears to relieve pain from fibromyalgia and, possibly, CFS, from studies done so far. They still need to do more research what other pain it will help. It is nontoxic (has side effects) and affordable as it is the ingredient in Narcan (you might Google it), which means it will block any opioids one is taking.

    -- Posted by Tyger on Tue, Nov 21, 2017, at 8:15 AM
  • I cant seem to find it being used for pain Tyger, although my search only consted of a search on the iphone. I will search with a computer later. Thanks.

    -- Posted by stevemills on Tue, Nov 21, 2017, at 10:28 AM
  • -- Posted by Tyger on Thu, Nov 23, 2017, at 8:23 AM
  • Thanks. I bookmarked it

    -- Posted by stevemills on Thu, Nov 23, 2017, at 8:30 AM
  • Now 12 days later and the antibiotics do not seem to be working much. I probably had a placebo affect the first few days but no longer.

    Stopping the gabapentin has helped my overall outlook on life, but with the constant pain and lack of sleep, I would evaluate things as back to normal. (the wrong side of normal)

    A few regulars are keeping up the blog comments, but I am sorely lacking in motivation to start new ones. Sorry. I will try today. I wish I could write my thoughts as I am feeding the cats, or cleaning their boxes.

    I would discuss them here but it is way off topic and I want to read your thought and responses.

    ebay has taken a hit as well. I often joke about we would be selling more if my wife's husband got in gear and listed more. Same line, but no joke.

    I FINALLY listed some things last week and ca-ching, I made some sales! Nothing phenomenal unless you consider that I listed at all. :-/

    I also have some seeds I want to sprout, but have had them about three weeks now and they sit in the same place as when I got them.

    I am going from this post to creating a new one, maybe two or three. BY forcing it a little, maybe I will get over my "writer's block".

    -- Posted by stevemills on Mon, Nov 27, 2017, at 9:27 AM
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